Leaving a Legacy of Hope
Why consider a legacy gift For many people, charitable giving is something they do throughout their lives. Legacy giving offers...
HIF Activities
Hope in Focus Strengthens Advocacy Through PPALS Training
On May 4-7, Hope in Focus Marketing and Community Engagement Manager, Eve Orcutt, participated in the Professional Patient Advocates in...
What’s for Dinner?
Wondering what has been served at Dinner in the Dark over the years? Here are the menus! Dinner in the...
Hope in Focus Attends Foundation Fighting Blindness Retinal Therapeutics Innovation Summit and Association for Research in Vision and Ophthalmology Annual Meeting
Hope in Focus Director of Outreach and Development Courtney Coates attended the Retinal Therapeutics Innovation Summit on May 2, 2025,...
MEET ANTHONY FERRARO: Social Media Star, Professional Athlete, Musician, and Dad Living with LCA
Prepare to be inspired by Anthony Ferraro, the featured speaker at our major fundraising event, Dinner in the Dark, on November...
Spring on the Road
May and June were busy travel months full of opportunities and learning for me as Director of Outreach and Development...
Hope in Focus Joins the Denise D’Ascenzo Walk to Fight Rare Diseases
Hope in Focus, a nonprofit 501(c)3 rare disease advocacy organization based in Ledyard, Connecticut, is partnering for the first time...
HOPE IN ACTION: A Conversation with Laura Manfre
How did Hope in Focus begin? In 2013, after our daughter, Sofia, was diagnosed with Leber congenital amaurosis (LCA) IQCB1/NPHP5, the Foundation...
Hope in Focus Brings Voices of People Living with LCA Directly to the FDA
Allison Wolf, whose 9-year-old son Elliot lives with the encroaching blindness of Leber congenital amaurosis (LCA), spoke directly to staff from...
Hope in Focus Grateful for 2023 Dinner in the Dark Success
So much more than a typical fundraiser, the 8th Hope in Focus Dinner in the Dark we advertised as “a unique sensory...