News

Representatives from Hope in Focus joined Connecticut’s Rare Disease Day celebration at the Capitol in Hartford on March 23, 2023. A New England snowstorm postponed the event usually [...]

Our 7th Annual Dinner in the Dark came off as an exciting evening of hope and fun, and an opportunity to foster and connect with the mission of Hope in […]

Please respond by Aug. 31, 2022 We’ve received 30 percent more responses in July to our Hope in Focus Leber Congenital Amaurosis (LCA) Community Survey, and we’re hoping to reach […]

Responses Needed By July 29, 2022 Telling your story helps bring the Leber congenital amaurosis (LCA) community together. It also helps rare retinal disease advocates like us at Hope in […]

Foundation Fighting Blindness begins its VISIONS 2022 national conference tomorrow, and Hope in Focus will be there to hear the latest research advances for Leber congenital amaurosis (LCA) and [...]

David Schulz has been appointed to our Board of Directors. He began his career at Pfizer Central Research as a Research Scientist in 1989 and was promoted to Executive Director […]

Thousands of scientists gathered in Denver for the annual conference of the Association for Research in Vision and Ophthalmology, known as ARVO, and, in my new role as Outreach & […]

Celebrating Connecticut Rare Disease Day 2022, Hope in Focus presented remarks Friday, February 25, 2022, to the Connecticut State Legislature on behalf of those living with Leber congenital [...]

The big news just keeps coming: fresh off the rebranding from Sofia Sees Hope to Hope in Focus, we are pleased to announce a pledge to raise $300,000 by 2025 […]

Ledyard, CT (October 19, 2021) — Sofia Sees Hope, a nonprofit that has been raising research funding and awareness around Leber congenital amaurosis (LCA) and other rare inherited retinal [...]