News

Sofia Sees Hope expands scope of the dinner with its inaugural LCA Family Conference held the same weekend. Mystic, CT (Aug. 22, 2018) — Tickets are now on sale for […]

Sofia Sees Hope, a nonprofit dedicated to assisting those with Leber congenital amaurosis (LCA) and other rare inherited retinal diseases (IRDs), has received a $22,000 grant from Sanofi Genzyme, [...]

Ledyard, CT (June 19, 2018) — When local Wireless Zone franchisees Scott Gladstone and Neil Ryan decided to donate seven Samsung Galaxy 8” tablets to Sofia Sees Hope (SSH) to […]

Sofia Sees Hope has joined with dozens of other organizations representing the 30 million men, women, and children living in the United States with rare disease, to support the Rare Disease […]

Ledyard, CT (April 9, 2018) — The Community Foundation for Greater New Haven recently awarded Sofia Sees Hope a $5,000 grant to help SSH create long-term financial planning and revenue […]

In the wake of the December 2017 approval by the U.S. Food and Drug Administration of voretigene neparvovec (LUXTURNA™) to treat vision loss in patients with biallelic RPE65 mutation associated [...]

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Sofia Sees Hope has launched a Family Connections program designed to help end the isolation that many feel when they receive a rare inherited retinal disease diagnosis. The Family Connections [...]

Ledyard, CT (February 6, 2018) — Sofia Sees Hope, an organization dedicated to finding treatments and cures for blindness caused by inherited retinal diseases (IRDs), is helping to ensure that [...]

Sofia Sees Hope launches International Rare Disease Day February campaign — ‘Get Tested, Get Connected’ — to encourage those diagnosed with rare inherited retinal diseases to receive genetic [...]