Power of Together 2 Provides $10K to Sofia Sees Hope
Ledyard, CT (Sept. 5, 2018) — Power of Together 2, a local crowd-funding group, raised $10,200 from 102 members to benefit Sofia Sees Hope in August. The money will be […]
5th ‘Dinner in the Dark’ to Benefit Inherited Retinal Disease Community and Research
Sofia Sees Hope expands scope of the dinner with its inaugural LCA Family Conference held the same weekend. Mystic, CT (Aug. 22, 2018) — Tickets are now on sale for […]
Sofia Sees Hope Receives Grant From Sanofi Genzyme
Sofia Sees Hope, a nonprofit dedicated to assisting those with Leber congenital amaurosis (LCA) and other rare inherited retinal diseases (IRDs), has received a $22,000 grant from Sanofi Genzyme, [...]
Sofia Sees Hope Pays It Forward With Verizon Wireless Donation
Ledyard, CT (June 19, 2018) — When local Wireless Zone franchisees Scott Gladstone and Neil Ryan decided to donate seven Samsung Galaxy 8” tablets to Sofia Sees Hope (SSH) to […]
SSH Supports RARE Act 2018
Sofia Sees Hope has joined with dozens of other organizations representing the 30 million men, women, and children living in the United States with rare disease, to support the Rare Disease […]
Sofia Sees Hope Receives Grant from Community Foundation for Greater New Haven
Ledyard, CT (April 9, 2018) — The Community Foundation for Greater New Haven recently awarded Sofia Sees Hope a $5,000 grant to help SSH create long-term financial planning and revenue […]
SSH Opposes States’ Efforts to Limit Access to LUXTURNA™
In the wake of the December 2017 approval by the U.S. Food and Drug Administration of voretigene neparvovec (LUXTURNA™) to treat vision loss in patients with biallelic RPE65 mutation associated [...]
Sofia Sees Hope Spring Newsletter 2018
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Sofia Sees Hope Launches Family Connections Program
Sofia Sees Hope has launched a Family Connections program designed to help end the isolation that many feel when they receive a rare inherited retinal disease diagnosis. The Family Connections [...]
Sofia Sees Hope Donates $65K to Help Ensure Free Genetic Testing for Inherited Retinal Disease Patients
Ledyard, CT (February 6, 2018) — Sofia Sees Hope, an organization dedicated to finding treatments and cures for blindness caused by inherited retinal diseases (IRDs), is helping to ensure that [...]