Diverse Emerging Therapies Featured at the 2025 Hope in Focus Conference in Minneapolis
The development of diverse treatment approaches for Leber congenital amaurosis (LCA) is necessary because no single modality will work for everyone affected....
Science Education
Living with IRDs: Insights and Inspiration from the Front Lines
The 2025 LCA Family Conference in Minneapolis, MN, offered four informational panel sessions, where the 135 attendees learned about living...
Moving Forward: Understanding More about Clinical Trials
The second panel session of the 2025 LCA Family Conference, “Participating in a Clinical Trial,” examined clinical trial development and...
Let’s Chat About … RARE-X with Karmen Trzupek
Through global data sharing and analysis, the nonprofit RARE-X (the research arm of Global Genes) is working to accelerate treatments for rare...
Second Global RDH12 Scientific Conference Brings Clinical Trials Closer to Reality
The community of people living with Leber congenital amaurosis caused by mutations in the RDH12 gene moved closer to realizing the shared...
Let’s Chat About…Gene-Independent Therapies for Inherited Retinal Diseases with Dr. Daniel C. Chung
We’ve heard a lot about therapies to correct mutations in specific genes causing blindness or low vision, and now research...
Let’s Chat About…Advancing Treatments into Clinical Trials with Ben Shaberman
Innovative funding initiatives created by the Foundation Fighting Blindness are accelerating research advances to find treatments for Leber congenital amaurosis (LCA) and other rare inherited...
Let’s Chat About … Opus Genetics with Ben Yerxa
Working with preclinical data from multiple Leber congenital amaurosis (LCA) studies at the same time, Opus Genetics hopes to advance research into gene therapy...
Let’s Chat About … Self-Advocacy and Supporting Your Child’s Education with Beth Borysewicz
Children living with visual impairment become more independent and empowered when parents set high expectations for their kids and challenge...
BioBonds: Innovative legislation would help fund clinical trials, including those for LCA
A proposed Congressional Act designed to help researchers launch clinical trials for emerging treatments gives hope for getting more treatments...