Using Their Fingers, Blind Children Learn Music and Languages with Lux+Louise
Building on her son’s love of music, singing, moving, and reading, Laura Steinbusch created a multilingual children’s songbook called Lux+Louise to help...
Family Stories
Life in the Time of Coronavirus
I first heard about coronavirus on my way back from a weekend of skiing in mid-January. It seemed to be...
An LCA Diagnosis Leads to Founding A Nonprofit for This Family
Even the Covid-19 cloud has a silver lining, and living proof is Andrew Picinich, a 4-year-old preschooler with LCA-CRX, an exceedingly rare...
Living with LCA: ‘It’s ABCs and 123s’
Blink and you just might miss toddler Jordynn rocket past you. A force to be reckoned with when it comes to...
Living with Leber Congenital Amaurosis: Dami’s Story
I was born in 1976 in Spokane, Washington. By the time I was born, my parents’ relationship was basically over,...
Kristen Steele: You’ve Gotta Fight for Your Right …
Kristen Steele knows a thing or two about telling her story and getting what she needs to be her best. The...
When Self-Advocacy Creates Change That Benefits Everyone
Kristen Steele is a trailblazer. The 21-year-old paved a smoother road for those without vision by changing massage-therapy exam protocol,...
LCA Families Finding Strength with Each Other
Heather Le’s anxiety accompanying her daughter’s diagnosis of Leber congenital amaurosis melted into relief when she connected with a mom whose daughter...
Nicole Kear: When Losing Vision, Carpe Diem?
Nicole Kear faked it for a long time. On a romantic getaway, as her boyfriend gazed at the starlit sky, she...
Living with LCA: ‘Know It’s Not Something You’re Going to Conquer in One Day’
The best of both worlds – that’s how Ashlyn Lincoln describes life with her two sons: 4-year-old Gunner, who was...